Jonathan Pitre is better known as the Butterfly Child. The 16-year-old’s skin is as fragile as the wings of a butterfly. He is in constant pain, enduring severe, infectious blistering. He suffers from recessive dystrophic EB, an excruciating and often fatal disease.
While he has been accepted to be part of a ground breaking medical procedure in Minnesota – a blood and marrow transplant to halt the advance of his disease – his mother can not afford to live there for the required year-long treatment. Costs could top $200,000. Tina Boileau is also donating her skin, bone marrow and blood to save her son.
What this family desperately needs is your help.
We are asking you to wear your support for Jonathan through the purchase of his $20 T-shirt and literally help to change his world.
They say that one small movement – like the flutter of a butterfly‘s wings - can cause a tsunami on the other side of the world. Please join us in making one small movement change Jonathan’s world.
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